A really frustrating thing about Crohn’s is you can randomly get sick, lose your appetite, and risk having all your food in the fridge go bad
If you are healthy, I’d like you to imagine this. It will change your perspective on life.
Step 1: Think of the worst sickness you’ve ever had
Step 2: Pretend that you currently have it
Step 3: Imagine yourself going to the doctor’s office to find treatment for said illness
Step 4: The…
This is so true.
Smiling no matter how bad the pain. We become good actors.Dying brb. This is the truth.
I am just sitting here in this chair about to have surgery in ONE week. Next Monday is surgery number 2 and I will be getting my S-pouch made out of my bowels and connected to my rectum.
Most people have a natural reaction to surgery to be scared or nervous, But I am not most of the time. I’m…
With Crohn's Disease, you will never have a normal relationship with food.
Everything you do will seemingly revolve around food. You are constantly fighting yourself between which decision is the *best* decision.
-When on prednisone: I want to eat so much freaking food forever.
Two days after prednisone: I need to cut back or I'm going to gain a billion pounds.
- When flaring: I'm so sick I don't want to think of food.
Doctor: You need to gain your weight back. I know it hurts to eat & you are too nauseated but you have to
Nutritionist: You need to gain weight but here eat all these veggies that will make your bowels obstruct.
- When you get obstructed bowels: Ughh why did I eat that?
Doctor: Don't listen to the nutritionist! See what they did to you?! Here you need an NG tube.
Nutritionist: Do you know how much sugar is in that?!?!
You find yourself getting too familiar with food labels. You spend most of your time thinking of meals in advance, weighing each option carefully. Soon enough you have a mental breakdown.
You see, healthy people. It's tough. Instead of getting angry at me for not taking your health advice or diet advice how about you love & support me? It's already hard enough living with this every day for the rest of your life.
Remicade starts today, for the first time in years. It will work, and I will keep my job, and I will get to act like I am in my 20s, unlike feeling and acting like an 80 year old for the last year and a half.
good luck! hope it makes you feel awesome :)
So many times I have just wanted to run away from everything and everyone but in reality…I just want to run away from myself and my illnesses.
